Shine's NPH Team

If you have Normal Pressure Hydrocephalus, live with or care for someone who does, or are a professional providing support - we’re here to help.

Support and Development Workers (SDWs)

Support and Development workers are on hand in England, Wales and Northern Ireland to help you make informed choices and to provide confidential information, advice and support on any of life’s ups and downs.

Common requests include:

• Understanding health conditions and treatment options
• Continence issues
• Support for unpaid carers to access respite and assistance with getting care assessments/care packages
• Housing adaptations
• Benefits for the person with NPH and their unpaid carer

Through our Support and Development Workers you also have access to Shine’s additional services, including our Health Team.

Shine’s Health Team have significant experience in the conditions we represent and understand the concerns, frustrations and possible choices you might face in gaining an accurate diagnosis and treatment plan for NPH.

As well as supporting NHS specialist clinics, arranging training and information for Shine members, and fellow professionals, and arranging one-stop health checks through Shine’s Virtual Health Hubs, they can advise individuals and their loved ones/carers on a one to one basis, on matters such as:

• Getting a diagnosis for NPH
• Shunts and ETVs (endoscopic third ventriculostomy)
• Continence
• Depression or anxiety
• Orthopaedics
• Physiotherapy
• Equipment and adaptations

In addition - for the health-care professionals in your life – our CPD accredited e-learning course on Normal Pressure Hydrocephalus can be accessed from the Professionals area of the Shine website to give professionals a more detailed insight into the condition.